Seems to be the story of our lives at the moment...just not enough time to get anything done! Can't believe it's been a month since my last post.
So what's been happening...well, the boys have pretty much been ill with colds, ear infections and asthma continually for over a month. Looks like the asthma is a family trait as it's taken hold of Alex too (so much for us just putting it down to S&J being premmy). We've had a couple of trips to hospital to get them checked all out but luckily they haven't been kept in. S&J are now on asthma preventer medication for the rest of winter. Hopefully it won't take long to get into their systems cos we all need a good nights sleep! Can't tell you the last time we had one night where all three kids slept through...Bren and I look like we've aged another ten years!
We finally got round to moving Alex out of our bedroom and in with S&J. All three are now in the bigger back bedroom where it's quieter and a little warmer. A&S have woken each other up a couple of times but J sleeps like a log; being deaf can have it's bonuses at times!
Took J to Randwick Children's Hospital last week to a CP clinic there. J had casts done for making his AFO's and will hopefully go for his first fitting in 4 weeks time. AFO's are basically open fronted ankle boots which you wear for standing or any feet weight-bearing. It should make such a difference to J cos he can't stand properly without them. He also had a hip x-ray as his hips are prone to dislocation due to the type of CP he has. Luckily at this young age hip dislocation isn't painful but you don't know if it's happened without an x-ray...I didn't get round to asking what happens if they are dislocated. He will need 6-monthly x-rays to monitor his hips. The CP Dr. said he can see J is doing well but the prognosis is that J won't walk and will be wheel-chair bound. You know, they have to give you the worst case scenario and this came as no shock to both Bren and I. Quite honestly, I believe that if Jacob wants to walk he will. I'm not saying that he'll be able to walk totally unaided (might need a walking frame) but he's such a patient and determined little boy that he will achieve anything he wants to. So if walking is a big deal to him then he'll do it. He has and will continue to set his own goals and only time will tell just what those additional goals might be. I look forward to seeing him reach his full potential; he's already made us so proud.
A&S have been attending the local occaisonal care on days when I need to take J to appt.'s that benefit one-on-one time with me. S has begun to settle in well and the centre now take him for upto 4 hours at a time. A continues to get upset throughout his stays and I have to remind myself that he's still only a baby (has just turned 10months). Have had all the boys weighed and measured during the last week. A is only 0.5kg lighter than J; S is about 2kg heavier than J. A is 77cm long, J is 90cm and S is 96cm. A's statistics are off the chart and have been for a while, J is average and S is slightly above average. Do I ever worry about A being such a big boy for his age?...have you seen his mum and dad?!!!! :-)
I'd best go and see what the boys are upto. They were watching Sesame Street on morning TV but there seems to be a bit of fighting going on...yep, we're now at the stage of mauling each other and wanting to play with everyone elses toys...at least they're all hitting those developmental milestone!!
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